'I felt like I was screaming into the void'
My interview with Rae Katz for her Lady's Illness Library series
It’s Friday where I am and I hope wherever you are, you have something relaxing, fun, or delicious planned for your weekend 😋.
I’ll be doing a round-up post probably by Sunday, but in the meantime, I wanted to draw your attention to this awesome conversation I had with
, a writer and person with lived chronic illness experience whom I admire tremendously. We discussed my path to getting diagnosed, my journey to obtaining disability benefits, pacing, and more. The piece is getting a lot of action in the comments section, and I’m so grateful to Rae for asking such great questions and for putting this out to the world.Rae writes the
newsletter here on Substack, “a newsletter about mysterious women’s diseases, work culture, mothering, money and power.” Her writing is at times haunting, profound, honest, and beautiful (and many times, all four). Please do check her out and subscribe.
If you are interested in learning more about my path to long term disability approval and are new here or just haven’t seen this yet, check out my guest blog post on Health Rising called My Long COVID Disability Journey.
More from me in a few days. Until then, here are a few pics of autumn doing its thing in my yard.
In sickness and in health,
✌🏻 Amy
Powerful and so eloquent. Makes me shudder with disbelief and anger, laugh out loud with glee, stamp my foot in frustration and raise my hands in praise! You are such a beacon of light and hope Amy. Thank you for your tenacity, your perseverance and courage under fire!
Hi Amy, I sent you the Tree to Tub cream and the Aveda hand lotion should be delivered soon. I so appreciate what you are doing for the long Covid community!! Thank you, Meghan.