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M (is) Living with Long Covid's avatar

Congratulations on your wedding anniversary <3 that's so spectacular. and also the hike wowwww!!!! im shook. (and not so secretly extremely jealous. i used all my energy for the day showering this morning. sigh)

also not to burst your bubble but the nasal spray got a bashing from Dr. Michael Hoerger, and another scientist explains the major issues in the study here https://www.reddit.com/r/ZeroCovidCommunity/s/pBxWlLEasG

thank you for your roundups <3

Amy - The Tonic's avatar

Thank you! And I’m sorry…I definitely remember those days when showering was the only thing that day. I know thoughts and opinions are mixed within the community, but the mind-body stuff has been really key for me. I believe it eventually put my nervous system in the right place for my inflammation and ancillary LC conditions to be healed. Not entirely there yet, but so much closer.

Ahh, thanks for the link. As one commenter on that Subreddit said, it’s nasal spray. It can’t hurt. So I’m giving it a whirl. I can’t hang my hopes up waiting for the perfect study. My plane ride to COVID ground zero (Florida) will involve a few squirts in each nostril before I put my KN95 on.

NiftyKeisha's avatar

Happy Anniversary!! Thanks for all that history! We're in challenging times, and seeing the juxtaposition of what was to what is now, I can see how it made you so emotional! I hope you have a good trip, and I always do a neti pot for prevention after being somewhere with high exposure. I hope the nasal spray helps to keep you safe.

Amy - The Tonic's avatar

Thank you, my friend, for the anniversary wishes and for getting my emotional state here 🫶🏻. I’m staying hopeful about dodging infection this time around. We’ll see 🤞🏻. I’ve heard Neti pots sometimes infect people with bacteria and other than that, I don’t know too much about them. Have you found them helpful?

NiftyKeisha's avatar

Super welcome! 💕 Yeah, bacterial infections can occur if people use tap or unfiltered water. To be extra cautious, I've often used distilled water that then gets boiled before adding salt to make the saline. I've also used filtered water in this way without any issue. When I'm tired, I just use Zarbee's aloe saline nasal mist, which acts in the same way as a Neti pot (gets around the whole pesky bacteria issue entirely 😊). I use it the minute I get home after being in the doctor's office or after PT. Nasal rinsing is extremely helpful for me. I find it helps me breathe better during allergy seasons, which my immunologist supports. I also did them religiously when I got Covid in 2020, and I think that's maybe one reason why I avoided much of the respiratory part (my symptoms were all GI and neurological). No way to prove that, though.

Amy - The Tonic's avatar

Thank you for all that! I’m far too lazy to follow all those steps re: a neti pot, but I just may pick up that Zarbee’s nasal mist, so thanks for sharing that too.

Just back from Florida tonight and really hoping I dodged a viral bullet, but in the shower tonight, I noticed all my lymph nodes are a tad swollen. Fingers crossed it’s just me effectively fighting something off and that the nasal spray and masking did the trick 🤞🏻

Dysautonomia Dietitian's avatar

Happy anniversary!!

I loved the term AP in place of referring to a flare up after over doing it. The way it’s reframing it as an adjustment period is such a gentle and important angle to view it from because we really are just adjusting to a new normal. I’ve never heard that term/reframe before. I think I will try to use that in the future 🥰

Also heavily agree with your thoughts on FDR. It’s hard not to be emotional seeing how much he truly did for the people through his programs. Today, that type of dedication and policy change can feel impossible in the current political climate but I am trying to hold out hope.

This was a great read, I wasn’t expecting a history cross-over this morning but thoroughly enjoyed it!

Amy - The Tonic's avatar

I’m so tickled you enjoyed this read! Yes, a little different from what I’ve been doing lately, and yet along the lines of some earlier posts in my archive.

I think AP is a really helpful reframe also! I give a lot of credit to Miguel Bautista of CFS Recovery for helping shift my mindset around all this.

I’ll hold out hope with you on the political climate. Complicated week to say that, but nonetheless.

Victoria's avatar

I had my hand over my heart a few times reading this one, Amy. Congrats to you and Baldy! BIG hugs.

Is there a medical research centre or a grant that the Roosevelts established to study Lyme Disease?

I've subscribed to Curious About Everything, thanks for that! I've already gone down a little rabbit hole about the ACE2 receptors and RAAS response of women vs. men. So many rabbit holes to delve into!

How's Riley? Thanks for all the great links! xoxo

Amy - The Tonic's avatar

Thanks for reading and being so supportive, Victoria 🧡. Ripley is doing okay! No further progress getting her inside but we’re going to contact a feral cat behavior specialist this week. Stay tuned!

Jenovia 🕸️'s avatar

I am too near you not to hear you! Feeling a roller coaster of emotions, but mostly gratitude that people like you exist alongside me in this world. 🫂

Happy Anniversary!!! And congratulations on hiking again!! Such wonderful news 🥹

I always love viewing FDR's early nature journals at the Natural History Museum, here in NYC. Your museum visit sounded lovely. Yes to staying tender!!!

Okay, the boiling the wooden spoons thing...I'm reading conflicting advice. Some of the internet says NO to boiling them, the other half says yes. Have you tried it?

Amy - The Tonic's avatar

Thank you for all the abundant love here. A few of you caught my hiking win and that feels like true love 🥹.

Shoot, I didn’t know FDR had nature journals at the Museum of Natural History! And I just mentioned to Baldy wanting to go there again.

Okay, so the wooden spoons…NOPE. Not doing it. I’m playing ostrich on this one. Too skeevy for me to face head on. How about you??

Jenovia 🕸️'s avatar

Hiking in forests soothes my nervous system in a way not much else does. I love being around all those trees full of wisdom!

I’m not sure if the young FDR display was temporary but it’s on the first floor by the entrance. I can’t imagine them taking it away and not displaying it somewhere else in the museum. It’s spectacular. He was such a lover of nature.

I’m not doing the boiling of the wooden spoons. Sounds sus and if we’ve made it this far on regular wooden spoon washing, I think we are okay. 😂

Amy - The Tonic's avatar

Would you say you prefer the forest or the ocean more? I think I’m more of a forest person, though I enjoy both.

I do hope at least one reader does the wooden spoon thing and reports back. I’m curious, but not enough to see it for myself.

Jenovia 🕸️'s avatar

The ocean holds a particular fascination that feels mysterious, dangerous, and FUN, but the forest feels like safety and soothing wonder. Just pure potent MAGIC. Forest for sure but the ocean is a very close second!

Amy - The Tonic's avatar

Beautifully said!

Noha Beshir's avatar

This was super lovely, Amy. I really enjoyed it and then I went down the protein rabbit hole after...

Amy - The Tonic's avatar

Thanks so much for reading and for your note, Noha. And…I feel like I’m probably a terrible rabbit hole enabler here! (Meaning, I’m a good one, but it’s a terrible thing to do to people!).

Catherine Lent's avatar

I access tears all too easily and so it was no surprise just reading about your dam breaking was enough for me. Trying to continue to be inspired and believe in the face of all the threats. Your perspective helps.

Amy - The Tonic's avatar

I’m with you 🫶🏻. Thanks for reading.

Ryan McCormick, M.D.'s avatar

Amy, thank you for sharing such a raw and powerful piece about finding your emotions again through FDR's legacy of actually caring for people. Your tears at the museum sound like such a profound moment of reconnection - both to your own feelings and to what genuine public service can look like. Your writing beautifully captures how historical perspective can help us process the grief and overwhelm of our current moment. And thanks for the links!

Amy - The Tonic's avatar

Appreciate you taking the time to read this, Doc, and for your thoughtful comment!

Meghan's avatar

The four mile hike is great news!

Amy - The Tonic's avatar

Thank you!! I was really psyched too 🤗. No kickback the next day and I even played volleyball.

Natalie McGlocklin's avatar

Just yes to everything you are feeling and saying. I’ve been fantasizing about rage screaming at attackers lately it’s so maddening. Also re: gifs I’ve begun adding them only as footnotes which has satisfied my need to express visually without interrupting flow and I’m happy with that.

Amy - The Tonic's avatar

Thanks friend! I’ve noticed your GIF strategy and I like how it doesn’t disrupt your flow.

Steph Fowler, LCPC, CADC's avatar

Happy anniversary! And thanks again for including my next pacing workshop in your round up!

I so appreciate your feelings on how different presidencies can be. Processing how vast those changes are is…a lot.

Amy - The Tonic's avatar

Of course! What you’re offering is fantastic. Hope it goes well.

Paula Sarro's avatar

Happy anniversary to you and Baldy, Amy! How great to celebrate by going to Hyde Park! I have always loved FDR and Eleanor and fully understand why you got emotional. The contrast between their administration and the current disaster is overwhelming. I agree that it’s important for us to keep feeling and connecting with our humanity. It IS a form of resistance.

Amy - The Tonic's avatar

Thanks Paula! Have you ever been to the museum? Might be a fun day trip for you on the train.

Paula Sarro's avatar

I visited with a friend many years ago and loved it!

Audrey Edwards's avatar

Great post, I made it all the way to the end, even through all the links and took a few detours along the way. Great format.

Amy - The Tonic's avatar

Oh I’m so glad! It sounds like the extra spacing helped, then?

Audrey Edwards's avatar

the spacing helped heaps - allowed me to take a breath and make choices. Loved the link about making better pasta at. home.

Amy - The Tonic's avatar

very good to know - I’ll stick with the spacing then. I learned a lot from that pasta article too!

Teri Adams's avatar

There is a Ken Burns series called (I think) The Roosevelts. It is so good! I highly recommend it. I think I have watched it all the way through at least twice.

Of course, my mother hated FDR for all his progressive accomplishments—although she didn’t turn down Social Security!

Do you know about or have you seen this statue?

https://newsletter.blogs.wesleyan.edu/2021/07/19/fdr-memorial-by-bergmann-76-is-a-tribute-to-overcoming-physical-barriers/

Amy - The Tonic's avatar

Ooh, good stuff here Teri. I’ll add that doc to my list of stuff to watch (I’m woefully behind on my Ken Burns viewing as a whole…sigh…). And that statue project is so very cool! Roosevelt Island isn’t too far from me. Maybe one day I’ll get there to see it in person.

Teri Adams's avatar

I love Ken Burns’ work so much. I don’t know how many times I’ve watched The Civil War. Sometimes, I’ll put it on, almost like background music.

He has a new one coming out soon on the American Revolution, which I am looking forward to.

He hasn’t been shy about his criticism of Trump, which is another thing to love him for.

Jodi Ettenberg's avatar

Happy anniversary, and thank you for the mention! 🤍